Shade Seekers On Buller

Shade Seekers On Buller
Shade Seekers On Buller

Sunday, 22 June 2014

make your story a good one

Hi all,

Many thanks to all those who have donated already. As I write I am $20 from the minimum level of donations and $720 from my target. One of the rewards of participating in this ride is that I get to reach out to a great number of family, friends, colleagues and acquaintances who I've met over the years. Its not just wonderful to get donations, it's heart warming to receive replies and encouragement. It helps to hear and share stories with others.

A few days after my last post in May, one of my long-term friends from the UK contacted me. It was great to hear from Simon, it had been a long time since we had last been in touch. He's known me and my family for over 25 years as we initially closely shared our roller-coaster ride of life and then watched each other follow our paths from afar. He confessed that with each post he is concerned that this will be THAT post. Well this isn't that post Simon.

My visit last month was a wonderful opportunity to see my mother and family again while my mother was at home. The highlight from the trip was the trip to the Olympic Park complex in London. The week before we had made a clumsy effort of going out for car ride. With my mother's reduced mobility and our inexperienced efforts, we took nearly an hour to get from inside the house to inside the car and exhausted my mother in the process. We cut short our plans and made an extended loop in the car before returning home to repeat the process in reverse, this time with thankfully less drama. It was an interesting drive though, we got to see some of the meaningful places of my father's childhood, the roads he rode as a teenage cyclist, the hills that tested him and his colleagues, and the houses that he lived in. I was reminded how good we have it in Australia from a cycling point of view, those narrow hedge-lined roads are pretty, and pretty damn dangerous to ride along with the UK's heavy traffic. Despite this shattering experience my mother was adamant that we must go to the Olympic Park complex. After our efforts at the short trip, this looked like an attempt on Everest without oxygen. Still my incredibly organised sister managed to find a vehicle we could hire that could take a wheelchair and came with a ramp, and with that we set off on a day-trip to the Olympic Park. It wasn't easy, but then memorable things seldom are. The trip reminded us, should there ever have been any doubt, of my mother's indomitable will.

My mother was in hospital for a period shortly after my visit and is now amongst very caring nurses at St Christopher's Hospice. She is weaker but still with us. She has daily visits from my father and sister and her Danish relatives and friends, who haven't stopped their wonderful visits and are still planning more to come. A benign and beautiful bunch of Viking raiders if ever there was one.

I'll close with two thoughts. One is from a a TED talk by the philosopher Stephen Cave. In it he discusses the point at which we realise we are mortal and the stories we tell about what happens next. I won't repeat the talk here, you can find it in full on TED,. but his concluding advice resonated with me. Here is how the transcript of his talk ends:
Now, I find it helps to see life as being like a book: Just as a book is bounded by its covers, by beginning and end, so our lives are bounded by birth and death, and even though a book is limited by beginning and end, it can encompass distant landscapes, exotic figures, fantastic adventures. And even though a book is limited by beginning and end, the characters within it know no horizons. They only know the moments that make up their story, even when the book is closed. And so the characters of a book are not afraid of reaching the last page. Long John Silver is not afraid of you finishing your copy of "Treasure Island." And so it should be with us. Imagine the book of your life, its covers, its beginning and end, and your birth and your death. You can only know the moments in between, the moments that make up your life. It makes no sense for you to fear what is outside of those covers, whether before your birth or after your death. And you needn't worry how long the book is, or whether it's a comic strip or an epic. The only thing that matters is that you make it a good story
The second is from my close Aussie friend Grant whose world-recognised work as a cancer specialist got me on this ride three years ago.  Grant and I were talking about some recent media coverage for Peter Mac on an advance in cancer treatment. Grant's response was positive, but as he said, he's tired of small improvements, he wants a big step change. Something that dramatically improves the way we diagnose and treat cancer. I for one hope he gets the help he and his colleagues need to take that step. Your donations can make that happen.

Make sure you make your life a good story.

Tuesday, 10 June 2014

Stephen Cave and life as a book

Came across Shane Parrish's reference to Stephen Cave's interview with NPR (here) and TED lecture (here) on Shane's Farnam Street site.

Cave is the author of Immortality: The Quest to Live Forever and How It Drives Civilization, an inquiry into humanity’s irrational resistance to the inevitability of death.

Shane paraphrases Cave's work in his blog in the following way:
Just as a book is bounded by its covers by a beginning and end, so our lives are bounded by birth and death. And even though a book is limited by a beginning and end, it can encompass distant landscapes, exotic figures, fantastic adventures. And even though a book is limited by a beginning and end, the characters within it know no horizons. 
They only know the moments that make up their story, even when the book is closed. And so the characters of a book are not afraid of reaching the last page. Long John Silver is not afraid of you finishing your copy of “Treasure Island.” And so it should be with us. Imagine the book of your life, its covers, its beginning and end, your birth and your death. You can only know the moments in between, the moments that make up your life. 
It makes no sense for you to fear what is outside of those covers, whether before your birth or after your death. And you needn't worry how long the book is or whether it’s a comic strip or an epic. The only thing that matters is that you make it a good story.

Tuesday, 3 June 2014

Hollowmen - really?

The Age newspaper (not it must be said a supporter of the Abbott government) published an article on the $20bn health fund.... funny but not flattering and to be honest, I hope they're wrong.

http://www.theage.com.au/federal-politics/political-news/tony-abbotts-hollowmen-moment-was-medical-research-fund-a-lastminute-distraction-20140603-39fl8.html

Thursday, 22 May 2014

If we get a $20bn health research fund, what does that mean?

Having stated in my last post that there were no surprises expected in the new Australian Government's budget - they pull a $20bn health research fund rabbit out of the hat. Well I guess that's the nature of surprises, if you knew they were coming, it wouldn't be a surprise.

Other than making me swallow humble pie and retire my crystal ball, what does it mean for medical research an institutions such as Peter MacCallum? One early response I got when I asked the question was "the $20B is very welcome news for the sector and visionary in many ways as Australia plans for a post-resource boom economy. The money will gradually increase over the next 3-4 years and no doubt be very good news for Peter Mac, as Australia's leading cancer research group. However substantial funding is 4 years away (if its gets through the senate) and patients need advances now!"

One article written by Dan Harrison of the Sydney Morning Herald (online http://www.smh.com.au/national/new-20-billion-medical-research-fund-wonky-wedge-or-wonder-cure-20140517-38gss.html#ixzz32QnQpi94) gave some further consideration. While details are still being worked out, key take home messages seem to be:

  • The money wouldn't be available immediately - the fund needs to grow up to $20bn and that isn't expected until 2020 and then the distribution made available is the interest on the capital, which would mean something like $500m in 2020 and $1bn in 2022.
  • The distribution will be across a number of priority health priority areas (arthritis, asthma, cancer, cardiovascular disease, dementia, diabetes, injury, mental health and obesity).
  • It still needs approval and is being tied to the less politically palatable cost co-payments initiatives (such as the $7 fee for GP visits)

So nothing is certain yet, other than the fact that there is research that needs funding right now, and that events such as the ride to conquer cancer will still have a very important place in allowing Peter MacCallum the capacity and discretion to fund their medical research.

Sunday, 11 May 2014

Travelling light

It's Mother's day here in Australia and Melbourne airport is surprisingly quiet, evidently not many people travel away on Mother's day. I'm here at the start of the long haul to London.

I'm staying for nearly two weeks on this trip, but travelling light with only one piece of hand luggage. This caused the Cathay Pacific guy at the check in desk to have a pleasant but possibly security triggered conversation with me. When I said I was travelling for family reasons he asked if it was to see my mother (it being mother's day), when I said 'yes' he said I was a good son to surprise my mother. Feeling that I might be getting too much praise, I explained that it wasn't quite a surprise and that she hadn't been too well recently. To which his reply was, "still a good son". Nice touch.

My mother is still at home being looked after by my dad, which is a great achievement by both of them. As we were warned, the steroids used to control the swelling from the tumour growth come with side effects that become increasingly apparent over time. In my mother's case it has significantly weakened her and caused swelling, but she is understandably proud to have regrown her hair. My father has put in a stair lift, a special bed, chair, grab rails around the house and they now have a wheel chair. As a finishing flourish, he's also installed a fish tank, with fish!

My sister will take a few days of her work while I'm over and apparently we aim to visit the site of the London Olympics. Maybe I should take a look at the velodrome... Been doing quite a few kilometres recently, but I don't think I'm quite ready... :)

Here in Australia we are only a couple of days away from our new government's budget. It's expected to be severe and no one is expecting grants for medical research, or even medical care, to increase. This means that funds from events like the ride to conquer cancer are ever more important to institutions such as the Peter Mac.

In my last mail out communication on my journey to the ride to conquer cancer, I mentioned that Sandra had asked the guests of her Great Gatsby themed 50th to donate money to my ride rather than buy presents. The generosity of our guests, and others who have donated separately, has seen me reach over 1/3 of the way to my target - but there is still a way to go.

Every little counts.

Til the next time,

John

Monday, 21 April 2014

Easter Monday Ride to Kinglake


Easter Monday Ride with Grant. Great weather, quiet traffic, at least until the return, and a family sized bowl of chips for a healthy snack on the way back.

The day started well with a spectacular dawn in Camberwell:



And then a great ride through to the Yarra Ranges.

Magic.

Saturday, 19 April 2014

Joining the Latte Riders for a spin down the Mornington Peninsula


Invited by a work colleague to join his Latte Riders crew for a ride to Sorento and back. You can read more about the Latte Riders on their facebook page here: https://www.facebook.com/LatteRiders and their website here: http://www.latterider.com

Grant, Tim and I joined them for a showery ride down to Dromana (in Grant and my case at least) and return, all for the fun of it, and the achievement of this month's Strava challenge!